Epilepsy and Intellectual Disability Specialist Service
We provide assessment and treatment for adults with complex epilepsy and intellectual disabilities across Nottinghamshire. We take a holistic approach to patients' neurological problems, diagnosing and treating epilepsy and associated health conditions. Our focus is on better seizure control and improved quality of life.
Our learning disability qualified epilepsy specialist nurses provide clinical services into the Queen's Medical Centre (QMC), City Hospital and Highbury Hospital in Nottingham, and King's Mill Hospital in Mansfield and Newark Hospital.
- Epilepsy Specialist Service for Adults with Learning Disability
- Information about epilepsy
- What to do when someone has a seizure
- SUDEP (Sudden Unexplained Death in Epilepsy)
Information for people taking Valproate
Information for women and girls taking medicine containing valproate:
- Female patient guide - What you need to know about valproate
- Valporate Information Booklet - Easy Read Version
- Female patients starting Valproate - Risk Acknowledgement Form [pdf] 104KB
- Valporate Risk Acknowledgement Form - Easy Read Version
Information for men and boys taking medicine containing valproate:
Our team and who we help
Our team
Sarah Pashley, Consultant Nurse in Epilepsy and Intellectual Disability
Lisa Flinton, Consultant Nurse in Epilepsy and Intellectual Disability
Claire Hudson, Senior Epilepsy and Intellectual Disability Specialist Nurse
Andrea Baldry, Epilepsy and Intellectual Disability Specialist Nurse
We work with four consultant neurologists/epileptologists and adult epilepsy nurses employed by Nottingham University Hospitals NHS Trust.
Who we help
We mainly provide services to:
- Adults in whom diagnosis and treatment can be challenging, and special expertise is needed to diagnose and manage their condition. This includes people with complex behavioural, sleep, movement, communication, and psychiatric disorders
- Adults with poorly controlled epilepsy
- Patients who have difficulty accessing mainstream health services and clinical investigations
- People who have epilepsy in association with a genetic diagnoses, for example Rett Syndrome, Tuberous Sclerosis, and people with Down's syndrome and dementia
- Teenagers in transition to adult services, to make the transition smooth for those with complex epilepsies, and teenagers with profound and multiple needs
- Healthcare professionals and community care providers who need specialist advice, education and training.
Our service also acts as a resource for the development of policies, procedures, guidelines and pathways.
What the service offers
We provide:
- Specialist epilepsy assessment, diagnosis and treatment
- Access to investigations (MRI, EEG, Neuropsychology)
- Inpatient video/EEG telemetry
- Epilepsy surgery assessment
- A vagal nerve stimulator service
- Information to help patients stay safe
- Transitional care from Paediatric Services
- Information and resources to increase understanding and concordance with treatment
- Liaison and signposting to other specialist intellectural disability services
- Advice about emergency / rescue treatment
- A telephone advice line
- Education and training
- Multi-disciplinary clinics
Epilepsy clinics
The Team provides regular clinics at the Queens Medical Centre, Nottingham City, King's Mill, Newark and Highbury Hospitals. Some clinics are jointly run with other specialists to meet individual’s specific health needs, such as:
- Teenage transition clinics in local special schools and hospital based clinics with paediatric services
- Neurology and intellectural disability psychiatry clinics
- Community based clinics and home visits to those with complex behavioural or palliative care needs
Find out more about the service we provide at the Queen's Medical Centre.
How to make a referral
Referral process
We accept referrals from primary and secondary healthcare professionals, and community based health and social care professionals. Self referrals are not accepted. GPs can refer using SystMOne F12 button Neurology. Choose the Epilepsy and Intellectual Disabilities option. Referrals should otherwise be made in writing to:
Sarah Pashley, Epilepsy Intellectual Disability Consultant Nurse,
Fern House, Highbury Hospital, Bulwell,
Nottingham
NG6 9DR
Telephone: 0115 854 2248 (Team Secretary)
or
Sarah Pashley, Care of Dr O’Donoghue’s secretary
Department of Neurology
D Floor, West Block
Queen’s Medical Centre
Nottingham
NG7 2UH
Travel Information
Travelling to Queen's Medical Centre (QMC)
Find your way here
Use Google Maps to find the best route to Queen's Medical Centre.
Bus
You can get to the site using various bus routes:
- Nottingham City Transport city bus routes
- Welcome - indigo - run by trentbartonDerby - Long Eaton - Nottingham
- Welcome - i4 - run by trentbartonDerby - Stapleford - Nottingham
- Welcome - Red arrow - run by trentbartonDerby - Nottingham
- Welcome - skylink - run by trentbartonCoalville - Long Eaton - Nottingham
- L2 - Nottingham,Broxtowe | CT4N
- 20 - Nottingham, Wollaton | CT4N
- 18, 18a, 18b, 18x - Nottingham, Stapleford | CT4N
Medilink runs every 15 minutes, Monday to Friday between Queen's Drive and Wilkinson Street park and ride sites and QMC and City Hospital.
- Medilink timetable - Skills Coach
Tram
The Queens Medical Centre Tram Stop is located at the site.
Bike
There are Sheffield stand cycling storage available on site.
There is a Citycard Cycle Hub located under the Tram stop, you will need to have a City Cycle Card to access.
You can plan your journey online by visiting the CycleStreets website.
Cycling to our sites is not only carbon emission free but is also excellent for physical and mental wellbeing.
Train
The nearest train station is Nottingham Railway (2.7 miles).
There is a tram stop at Nottingham Railway Station which takes you directly to Queens Medical Centre.
For help planning your journey please visit: Plan Your Journey | Traveline
Parking
There are designated pay & display car parks for public parking run by Nottingham University Hospitals.
The main patient and visitor parking areas at QMC are car park 1 (access on East Road) and car park 3 (access at the junction between East Road and South Road).
Travelling to City Hospital
Find your way here
Use Google Maps to find the best route to City Hospital.
Bus
You can get to the site using various bus routes:
- Nottingham City Transport city bus routes
- 141 Bus Route and Timetable: Sutton in Ashfield - Nottingham | Stagecoach
- Welcome - threes - run by trentbarton Nottingham - Mansfield
- L14 - Nottingham, City Hospital, Basford, Bulwell | CT4N
Medilink runs every 15 minutes, Monday to Friday between Queen's Drive and Wilkinson Street park and ride sites and QMC and City Hospital.
- Medilink timetable - Skills Coach.
Tram
City Hospital is not directly served by the tram service, however you can use tram stops Wilkinson Street Park and Ride and QMC and Connect to the Medilink bus.
Bike
There are bike racks available on site.
There is a Citycard Cycle Hub located on the South Road opposite Clinical Haematology, you will need to have a City Cycle Card.
to access. You can plan your journey online by visiting the CycleStreets website.
Cycling to our sites is not only carbon emission free but is also excellent for physical and mental wellbeing.
Train
The nearest train station is Bulwell (2.1 miles) and Nottingham Station (4.4 miles).
For help planning your journey please visit: Plan Your Journey | Traveline
Parking
There are designated pay and display car parks for public parking run by Nottingham University Hospitals .
Travelling to Highbury Hospital
Find your way here
Use Google Maps to find the best route to Highbury Hospital.
Bus
You can get to the hospital using Nottingham City Transport (NCT) bus routes 68 and 69:
- 68 - Snape Wood and Hempshill Vale to City | Nottingham City Transport
- 69 - Snape Wood and Hempshill Vale to Nottingham, via Sherwood Rise, Bulwell | Nottingham City Transport
Tram
The Highbury Vale Tram Stop is a 10 to 15 minute walk from the hospital.
Bike
There are bike racks available on site to store your bike.
You can plan your journey online by visiting the CycleStreets website.
Cycling to our sites is not only carbon emission free but is also excellent for physical and mental wellbeing.
Train
The nearest train station is Bullwell which is less than a 1 mile away.
For help planning your journey please visit: Plan Your Journey | Traveline
Parking
Highbury Hospital offers free onsite parking for both visitors and outpatients.
Spaces can be limited after 9am. Do allow a little extra time to find a parking space, especially during busy periods.
Travelling to Kings Mill Hospital
Find your way here
Use Google Maps to find the best route to Kings Mill Hospital.
Bus
You can get to the site using various Stagecoach and Trent Barton bus routes:
- 1 Bus Route and Timetable: Mansfield Woodhouse - Alfreton | Stagecoach
- 141 Bus Route and Timetable: Sutton in Ashfield - Nottingham | Stagecoach
- Welcome - threes - run by trentbartonNottingham - Mansfield
- Welcome - nines - run by trentbartonDerby - Mansfield
- Welcome - 33 - run by trentbarton Ilkeston - Mansfield
- Timetable - 90 - run by trentbarton Ripley - Mansfield
Bike
Bike racks available at Kings Mill Hospital main entrance.
You can plan your journey online by visiting the CycleStreets website.
Cycling to our sites is not only carbon emission free but is also excellent for physical and mental wellbeing.
Train
The nearest train stations are Mansfield (1.7 miles) and Sutton Parkway (2.1 miles).
For help planning your journey please visit: Plan Your Journey | Traveline
Parking
There is limited free visitor and service user parking onsite.
Paid carpark available at Kingsmill Hospital site.
Do allow a little extra time to find a parking space, especially during busy periods.
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