Epilepsy and Intellectual Disability Specialist Service

We provide assessment and treatment for adults with complex epilepsy and learning disabilities across Nottinghamshire. 

We take a whole person approach. This means we look at epilepsy alongside other health needs. Our aim is to improve seizure control and help people have a better quality of life. 

Where we work 

Our learning disability epilepsy specialist nurses provide care at: 

  • Queen's Medical Centre (QMC), Nottingham
  • City Hospital, Nottingham
  • Highbury Hospital, Nottingham
  • King's Mill Hospital, Mansfield
  • Newark Hospital  

Information about epilepsy 

Information about valproate 

Valproate is a medicine used to treat epilepsy. It has important risks, especially for people who could become pregnant. 

Information for women and girls:

Information for men and boys:

Our team and who we help

Our specialist nursing team includes: 

  • Consultant Nurse in Epilepsy and Intellectual Disability
  • Senior Epilepsy and Intellectual Disability Specialist Nurse
  • Epilepsy and Intellectual Disability Specialist Nurse 

We also work closely with: 

  • Consultant neurologists and epileptologists
  • Adult epilepsy nurses from Nottingham University Hospitals NHS Trust 

 
Who we help 

We mainly support: 

  • Adults with epilepsy that is hard to diagnose or treat
  • People with poorly controlled seizures
  • Adults who find it hard to use mainstream health services
  • People with epilepsy linked to genetic conditions, such as:  
    • Rett syndrome
    • Tuberous sclerosis
    • Down's syndrome and dementia
  • Teenagers moving from children's services to adult services
  • Health and care professionals who need specialist advice, training or education 

We also help develop policies, guidelines and care pathways. 

What the service offers

We provide: 

  • Specialist epilepsy assessment and treatment
  • Access to tests such as MRI, EEG and neuropsychology
  • Inpatient video EEG monitoring
  • Epilepsy surgery assessment
  • A vagal nerve stimulator service
  • Safety information for patients and carers
  • Support with moving from children to adult services
  • Clear information to help people take their medicines correctly
  • Links to other learning disability services
  • Advice on emergency and rescue medicines
  • A telephone advice line
  • Education and training
  • Multi disciplinary clinics 
     

Epilepsy clinics 

We run regular clinics at: 

  • Queen's Medical Centre
  • Nottingham City Hospital
  • King's Mill Hospital
  • Newark Hospital
  • Highbury Hospital

Some clinics are run with other specialists to meet individual needs, including: 

  • Transition clinics for teenagers in special schools and hospitals
  • Neurology and learning disability psychiatry clinics
  • Community clinics and home visits for people with complex needs or palliative care needs

You can find out more about the service we provide at the Queen's Medical Centre. 

Find out more about the service we provide at the Queen's Medical Centre.

How to make a referral

Referral process 

We accept referrals from primary and secondary healthcare professionals, and community based health and social care professionals. Self referrals are not accepted. GPs can refer using SystMOne F12 button Neurology. Choose the Epilepsy and Intellectual Disabilities option. Referrals should otherwise be made in writing to:

Sarah Pashley, Epilepsy Intellectual Disability Consultant Nurse,
Fern House, Highbury Hospital, Bulwell,
Nottingham
NG6 9DR

Telephone:  0115 854 2248 (Team Secretary)

or

Sarah Pashley, Care of Dr O'Donoghue's secretary
Department of Neurology
D Floor, West Block
Queen's Medical Centre
Nottingham
NG7 2UH

Service pathway process map

Travelling to Queen's Medical Centre (QMC)

Find your way here

Use Google Maps to find the best route to Queen's Medical Centre.

 

Bus

You can get to the site using various bus routes:

Medilink runs every 15 minutes, Monday to Friday between Queen's Drive and Wilkinson Street park and ride sites and QMC and City Hospital.

 

Tram

The Queens Medical Centre Tram Stop is located at the site.

 

Bike

There are Sheffield stand cycling storage available on site.

There is a Citycard Cycle Hub located under the Tram stop, you will need to have a City Cycle Card to access.

You can plan your journey online by visiting the CycleStreets website.

Cycling to our sites is not only carbon emission free but is also excellent for physical and mental wellbeing.

 

Train

The nearest train station is Nottingham Railway (2.7 miles).

There is a tram stop at Nottingham Railway Station which takes you directly to Queens Medical Centre.

For help planning your journey please visit: Plan Your Journey | Traveline

 

Parking

There are designated pay & display car parks for public parking run by Nottingham University Hospitals.

The main patient and visitor parking areas at QMC are car park 1 (access on East Road) and car park 3 (access at the junction between East Road and South Road).

Travelling to City Hospital

Find your way here

Use Google Maps to find the best route to City Hospital.

 

Bus

You can get to the site using various bus routes:

Medilink runs every 15 minutes, Monday to Friday between Queen's Drive and Wilkinson Street park and ride sites and QMC and City Hospital.

 

Tram

City Hospital is not directly served by the tram service, however you can use tram stops Wilkinson Street Park and Ride and QMC and Connect to the Medilink bus.

 

Bike

There are bike racks available on site.

There is a Citycard Cycle Hub located on the South Road opposite Clinical Haematology, you will need to have a City Cycle Card.

 to access. You can plan your journey online by visiting the CycleStreets website.

Cycling to our sites is not only carbon emission free but is also excellent for physical and mental wellbeing.

 

Train

The nearest train station is Bulwell (2.1 miles) and Nottingham Station (4.4 miles).

For help planning your journey please visit: Plan Your Journey | Traveline

 

Parking

There are designated pay and display car parks for public parking run by Nottingham University Hospitals .

Travelling to Highbury Hospital

Find your way here

Use Google Maps to find the best route to Highbury Hospital.

 

Bus

You can get to the hospital using Nottingham City Transport (NCT) bus routes 68 and 69:

 

Tram

The Highbury Vale Tram Stop is a 10 to 15 minute walk from the hospital.

 

Bike

There are bike racks available on site to store your bike.

You can plan your journey online by visiting the CycleStreets website.

Cycling to our sites is not only carbon emission free but is also excellent for physical and mental wellbeing.

 

Train

The nearest train station is Bullwell which is less than a 1 mile away. 

For help planning your journey please visit: Plan Your Journey | Traveline

 

Parking

Highbury Hospital offers free onsite parking for both visitors and outpatients.

Spaces can be limited after 9am. Do allow a little extra time to find a parking space, especially during busy periods.

Travelling to Kings Mill Hospital

Find your way here

Use Google Maps to find the best route to Kings Mill Hospital.

 

Bus

You can get to the site using various Stagecoach and Trent Barton bus routes:

 

Bike

Bike racks available at Kings Mill Hospital main entrance.

You can plan your journey online by visiting the CycleStreets website.

Cycling to our sites is not only carbon emission free but is also excellent for physical and mental wellbeing.

 

Train

The nearest train stations are Mansfield (1.7 miles) and Sutton Parkway (2.1 miles).

For help planning your journey please visit: Plan Your Journey | Traveline

 

Parking

There is limited free visitor and service user parking onsite.

Paid carpark available at Kingsmill Hospital site. 

Do allow a little extra time to find a parking space, especially during busy periods.

 

 

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